Hello Everyone!
Feb. 15 is International Angelman Day.
I am sure most of you know that my son, Scotty has Angelman
Syndrome. Part of chromosome 15 he
received from me is deleted. My son
cannot speak. Scotty has seizures. He has severe reflux, chronic constipation,
asthma, scoliosis, suffers from headaches, back pain, hip pain, he has chronic
upper respiratory infections, his airway often closes when he gets a cold, his
walking is off balance and he often falls, he has jerky movements, has difficulty
feeding himself, and yet he smiles.
Angelman Syndrome is a devastating disorder. Look past the beautiful face and the obvious
love in his eyes and you just might see the struggle.
There is nobody in this world that can take the hope
away from me. The hope for a cure. The hope that my son will talk and be seizure
free one day. Please share this blog
post and spread awareness for Angelman Syndrome. Help us find and fund a cure. Go to cureangelman.org and donate 15.00. Do it for Scotty and all other people
struggling with AS.
Learn more about this disorder go to
cureangelman.org.
I will be
celebrating each day my son’s life, his determination, his great beautiful
spirit of joy and love, and I will celebrate the hope and faith that there will
be a cure in his lifetime.
Click the link below and see a beautiful message from fellow Angel Parent Colin Farrell.
here is a link to a video about my scotty...enjoy
