Tuesday, January 31, 2012

Where is God Amongst the Crazy?


1/31/2012






I met Him in the psychiatric triage unit at Buffalo General Hospital on 1/30/2012.  He was in the eyes of a 53 year old dad/ grandpa who hears voices that tell him to hurt himself.  He was in the heart of a 43 year old woman who cuts herself when she is anxious.  He was there with a teen addict who recently was hit by a car and now suffers from daily seizures.  I saw a glimpse of Him in a married woman’s voice as she told of a night of too much drinking and taking 2 pills she knew she should have not taken.  Even a homeless woman who claims to see demons and wasn’t sure if we were in hell or limbo or waiting to be reborn.

I am nothing more than a married woman with 3 sons.  One happens to be an Angel on Earth who has changed my life forever.  On this day, I broke.  The world succeeded and I fell.  The white flag was flailing.  With all the responsibilities of a mom to two strong willed sons and a mom to an angel, wife, business owner, and student, I finally waved my arms in defeat.  The weight of finances and their lacking, the nut cracked.  That nut was me. 

I normally show a strong front and a smiling face.  Unfortunately, I forgot to do one simple thing.  I forgot to let go and let God lead me.  I forgot that I was loved.  I forgot that I wasn’t alone.  I believed the lies in my head and heart that nobody cared.  I believed the lies that I had to handle everything on my own.  I believed in the fatal thought that there was no hope.

God can and does work through every situation.  I regained my faith and hope amongst many other psychiatric patients waiting to be evaluated to determine if we stay or go.   As I sat there waiting many hours to be interviewed and evaluated, I tried to avoid eye contact and sat in a corner.  I looked my part of a mental health patient.  

There was Wendell pacing back and forth waiting for me to look up to notice him.  I wouldn’t.  He sat next to me.  I cried just wanting to go home to my husband and children and sobbed in question how on earth did I end up here? 

Meal time has arrived.  I meekly took my white paper bag of milk, cookie, turkey sandwich, and pear.  I ate the pear in silence.  Wendell eagerly ate his dinner, still trying to make eye contact.  I caved and turned and he asked “you gonna eat your sandwich?”  I handed my bag to him with a smile.  He whispered to me: “you will be all right.”  Tears fell down my face.  It must have been obvious that I was a first timer.  We chatted a long time and others joined us.  I asked him why he was there and he told me that he hears voices and they tell him to kill himself.  He has swallowed bleach, overdosed on prescription drugs, has tried to hang himself, and recently the voices told him to jump off of the skyway.  I proceeded to inquire about his family and life.  He has 4 children and 3 grandchildren and a wife who all love him.  However, he still feels alone and the voices won’t quiet down.  Wendell was my protector for the rest of the evening.  He made sure that another patient stayed away from as he tried to approach me and tell me I was “hot” and if I wanted a new boyfriend.  Wendell told him to not talk or look at me again.  

Other patients began to tell their stories and why they were there.  Drug withdrawal, fight with boyfriend, cutting, alcohol and drug reaction, attempted suicides, seeing demons, and one gentleman relapsed after 6 years of being clean and sober.  They all wanted to know my story.  I was ashamed to be there.  Not because I didn’t belong.  I was one of them.  I was just like every other person there:  at some point I let  go of the truth, my faith, and hope.   I spoke of my children and Angelman Syndrome.  I spoke of seizures and meds.  I spoke of me being brought here against my will.  We had our own group therapy session going on.  We laughed, we cried, we even prayed for one another. 

As some of them shared where they go for counseling as an outpatient.  I admitted that I had worked at two of the establishments they spoke of when I was younger.  I was a mental health therapist for several years as a young graduate.  They all looked at me with eyes widened and jaws dropped.  I said, “yup we are just as crazy as the rest of the world”.  The laughter that came from the room caused the nurse to come in and check on us.  She said she wished there was so much fun on this ward every night and told me I can come back anytime.  I smiled and politely declined with a giggle.

Why am I sharing this story with you?  Because God used these people to remind me that amongst all the crazy He is there.  Amidst the sorrow, He is there.  We are never alone.  I have people who love me and would risk our friendship and force me to go to the hospital for psychiatric evaluation.  I have an AS family that love me more than I can imagine.  Some of you have never met me and yet have reached out to help us in our desperate time of need.   I have children who love me and need me.  I have many many angels on earth.  I just have to open my heart and eyes to see and feel them.

I am home now and plan to never ever let go of God’s promises and hope again.




Sunday, January 1, 2012

My confession and declaration for a new year

Welcome to 2012!  It has been an interesting start in our household.  I have decided to stand up for myself.  Looking back on my 44 years, I have noticed a pattern of allowing people, including family and people I love, to hurt, disrespect, mistreat, and ignore me.  I often avoid conflict.  Which I have noticed is a mistake in itself.  I can no longer allow people to say whatever they want to- to us or about us (my family that is).

Don't get me wrong, I believe that love can conquer all.  I still believe in God's words spoken over us of His promises.  I believe in Jesus Christ.  However, I do not believe God, our heavenly father and creator intended for us to allow ourselves to  be stepped on, abused, mistreated, etc.  We are allowed righteous anger.  We are allowed to stand up for ourselves.  From now on, the first sign of abuse (emotional, physical, or spiritual)  I will confront the source.  I will NO longer stand by and allow this mistreatment to continue.

I am so thankful for God and His wisdom and His patience with me.  I know 44 years is a very long time for a somewhat intelligent woman to finally get it.  Just because I call myself a Christian..doesn't mean I  should allow people to treat me or mine like crap!

I have this nasty habit of allowing people to talk to me and my children any which way they choose.  I tend to bite my tongue and avoid conflict any chance I can.  I put my smile on my face and take the hit.  But than the hit becomes a beating.  How long can one person take this abuse?  I ask you to consider this:  Why when we see an injustice to others, as Believers, we will stand up and speak up...but when we are witness to injustice and abuse to ourselves, we say NOTHING! 
I am one of God's creations, am I not?  Don't I deserve to be loved as I have loved? 

It takes a lot for me to reach out and ask for help.  So when I do, it is a HUGE thing.  However, each time I have asked for help from a source that you would think would come to your side, answers NO..time and time again, wouldn't it make sense for me to learn to carry on without their help?  I have learned to do the best I can with what I have without expecting anything from my parents or sisters.  I love them with all of my heart.  However, having a child with special needs really puts people in two categories:  (1) those who "get it" and (2) those who DON"T!

I can continue and break it down even further to groups of people who do not get it, but admit that they don't and love you and your child anyways..and want to learn how to "get it"..they ask questions, they offer to lend a helping hand..they offer to listen when you need to vent...and then there are those who don't get it..and refuse to get it..and choose to stay in their selfish worlds and choose to stay ignorant and remain in their fear...and pass judgement...and tell you how to love, care for, or raise your child with special needs.

I have NO use for the group of people who choose to stay ignorant and to stay selfish.  I do not ask for much.  Just for some compassion and empathy.  I DO NOT want any one's pity, it does me and my children NO good!  I will take your prayers and kind and sincere words.  I have no time for fakeness or hypocrisy.

My son, Scotty was misdiagnosed with Cerebral Palsy for the first 7 years of his life.  He also has Lennox Gestaut Syndrome (a form of epilepsy that is very difficult to control).  I felt so alone for many years of caring for him.  Until 2009, he was correctly diagnosed with Angelman Syndrome.  It was difficult at first for me to reach out to the AS community.  I tend to do things on my own, or put up the front that I have everything under control.  I am here to confess, I am a MESS most of the time.  Much pain and worry and sorrow are behind this smile of mine.

I have learned to love the life I have (for the most part)..but I have also learned that I do not have to tolerate anyone who does not genuinely and sincerely love me/us.  I will continue to surround myself with those who actually give a crap about me and mine.  I love with all of me...I no longer will accept anything less from anyone else in my life.

This extended AS family has shown me that I am NOT alone.  Families do not always come from a blood line.  Families are brought together with a commonality.  Our AS family does not always agree on everything, however, we do agree on how much we love our Angels...and how much we need one another to get through the endless sleepless nights, the fears of waking up to find your Angel not breathing...I have found some lifelong brothers and sisters through AS.  I am not a big fan of AS and what it does to my Scotty, but I am a fan of who AS has brought into my life.  As I type this I cry for so many reasons.  I cry for all the Angels lost too soon.  I cry for my parents and sisters who choose not to get to know me and my Angel on a more personal level.  I will have to be content with the superficiality of our relationships and just keep smiling through the hurt, disappointment and pain.

I know now who I can trust and rely on.  That is my AS family.  I turn to many of you for encouragement and support.  You may not know it, but I look for your posts and stories to lift me up when I am not my strongest.  I watch your videos to help put that smile back on my face.

I know who loves us.  I know who cares enough to reach out.  I love Scotty's caregivers, Brittany, Angelica, and Hayley who help my load  become little lighter.

I can no longer not speak up or against anyone who is against us.  God is for us, and I will continue to listen to His guidance.  I will follow Him and not any person/man.

I have learned so much since I have allowed Jesus in my heart.  I have learned that just because someone calls themselves a Christian...does not mean they are...just because someone is a pastor, priest, or leader in a church, makes them "right" with God.

When you hear a pastor or priest say at the pulpit:  "God has given me the right to judge"  or "My church, my altar, my decision"  or "that's cute and all, but your son is nothing but a distraction"  or  "as I stand up here and speak to you, it is as if Christ himself is speaking to you"   RUN...Run as fast as you can!!  Do not allow yourself to follow any man...follow only God...He will NEVER let you down or disappoint you.

I have learned to speak up when you learn of gossip about yourself, your  children, and other church members from the pastor.  Do not just sit back and take it....speak up and move on!!!

I want to thank you for reading  my 2012 declaration!  This declaration is part confession and part resolution.

Peace and Blessings be on us all as we embark on a new year!